Come On Down!!!

At some point in May, I kept the boys home from school. Just because I wanted to spend the day with them. The alarm went off at 5:15 as per my new norm. I quickly reached over and turned it right off. My warm, cozy, sleeping boys were the bookends holding me in bed. I feltContinue reading “Come On Down!!!”

The Magical Life You Hadn’t Planned

Mr. and Mrs. C I have the results of your son’s vision exam. As we suspected he has albinism. Have you heard of that before? Is that when someone is an albino?  Yes, but that term isn’t really used anymore. Listen, I have a lot of information to share with you. First, I need youContinue reading “The Magical Life You Hadn’t Planned”

The Sun Sets Without Magic Tonight

Losing control is not a luxury I can afford. Yelling and showing emotion only overloads his sensory system even more, making things worse. So, I do what the behavioral therapists have taught me to do, I stay calm, give as little attention as possible and stick to my guns. It sucks.

I couldn’t say it better myself…

I am the mother of a child with special needs, and I don’t want your advice. There. I said it. I don’t want your advice. I don’t want to hear your opinion about how I parent my child. I don’t care about some study you read online that says that everything I’m doing is wrong. […]Continue reading “I couldn’t say it better myself…”